(Alex in her ducky towel all snug after a bathy)Sooo...After multiple phone calls (nothing is ever easy) I was finally able to reschedule Alexandria's MRU test; this time with general anesthesia. The test is scheduled for November 10th and the follow-up appointment to talk about test results and a plan of action is scheduled for November 16th.
As far as other appointments: This Monday October 26th we have a follow-up appointment with the Feeding Team - the Child Psychologist will be present at all our visits with the Feeding Team from now on so I won't have to scheduled these 2 separately. On November 4th we have a follow-up appointment with G.I. Nutrition and G.I. Physician to talk about Alexandria's growth, weight and any adjustments to her tube feeds if need be. Your prayers are much appreciated.
Also, I finally got in touch with a woman who does complex scheduling for CHOP! I am looking forward to her help...
Other then that Alex is doing well! She is very active and smart and has such a cute little personality!
Hope you enjoyed this nice sunny day!
Till next time...
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